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Organization Type: 
NGO - Non Government Organization
Service Language: 
Services Provided: 
Information provision and referral

Federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Wesbite includes databases of rare diseases and organizations that assist people with rare diseases. Also includes research and news.

Contact Info
Primary Telephone: 
(203) 744-0100
Email Address: 
Fax Number: 
Tollfree Phone Number: