National Organization for Rare Disorders

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Organization Type: 
NGO - Non Government Organization
Service Language: 
English
Services Provided: 
Information provision and referral
Research
Advocacy

Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Consists of a voluntary membership of health organizations. Website contains a rare disease database, a database containing member organizations, and information about research, programs and services about rare diseases.

Primary Telephone: 
(203) 744-0100
Email Address: 
orphan@rarediseases.org
Fax Number: 
(203)798-2291
Tollfree Phone Number: 
1-800-999-6673
Street Address: 
55 Kenosia Avenue PO Box 1968
City: 
Danbury
Province: 
Conneticut
Postal/ZIP Code: 
06813-1968